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Measurement of informal care: an empirical study into the valid measurement of time spent on informal caregiving.

机译:非正式护理的衡量:对非正式护理所花费时间的有效衡量的实证研究。

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摘要

The incorporation of informal care into economic evaluations of health care is troublesome. The debate focuses on the valuation of time spent on informal caregiving, while time measurement, a related and may be even a more important issue, tends to be neglected. Valid time measurement is a necessary condition for the valuation of informal care. In this paper, two methods of time measurement are compared and evaluated: the diary, which is considered the gold standard, and the recall method, which is applied more often. The main objective of this comparison is to explore the validity of the measurement of time spent on providing informal care. In addition, this paper gives empirical evidence regarding the measurement of joint production and the separation between 'normal' housework and additional housework due to the care demands of the care recipients. Finally, the test-retest stability for the recall method is assessed. A total of 199 persons giving informal care to a heterogeneous population of care recipients completed the diary and the recall questionnaire. Corrected for joint production, informal caregivers spent almost 5.8 h a day on providing informal care. If one assumes that respondents take into account joint production when completing the recall questionnaire, the recall method is a valid instrument to measure time spent on providing informal care compared to the diary. Otherwise, the recall method is likely to overestimate the time spent on providing informal care. Moreover, the recall method proves to be unstable over time. This could be due to learning effects from completing a diary.
机译:将非正式护理纳入对卫生保健的经济评估很麻烦。辩论的重点是对非正式护理所花费的时间进行评估,而时间测量是一个相关的问题,甚至可能是一个更重要的问题,往往被忽略。有效的时间测量是评估非正式护理的必要条件。在本文中,比较和评估了两种时间测量方法:日记(被视为黄金标准)和召回方法(被更频繁地使用)。这种比较的主要目的是探索提供非正式护理所花费时间的有效性。此外,本文提供了关于联合生产的测量以及由于受护理者的照料需求而使“正常”家务与额外家务之间的分离的经验证据。最后,评估召回方法的重测稳定性。共有199人向不同类别的接受护理者提供非正式护理,完成了日记和召回问卷。经过联合生产校正后,非正式护理人员每天花费近5.8小时提供非正式护理。如果假设受访者在填写召回问卷时考虑到联合生产,则召回方法是一种有效的工具,可以用来衡量与日记相比提供非正式护理所花费的时间。否则,召回方法可能会高估提供非正式护理所花费的时间。此外,事实证明,召回方法会随时间推移而变得不稳定。这可能是由于完成日记而产生的学习效果。

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